Chronic Thromboembolic Pulmonary Hypertension (CTEPH)

CTEPH is a rare type of pulmonary hypertension (PH). In CTEPH, a thrombus (clot-like mass) gets stuck to the lung’s blood vessel wall and blocks blood flow.  CTEPH is frequently underdiagnosed and frequently undertreated. The most common symptoms are shortness of breath with exercise/activity, fatigue and tiredness or weakness – and a depressed mood. It’s difficult for a doctor to tell that you definitely have CTEPH, based on symptoms alone, because they are similar to those of other conditions such as pulmonary hypertension (PH).  If a doctor suspects you have CTEPH, you would undergo some specialized tests.  And if you’re diagnosed, your doctor will discuss treatment options with you, including surgery. Tune-in — to learn more about its diagnosis, symptoms and risk factors.  And meet someone who’s living with this condition.  We’ll also tell you about an incredible website, filled with great information and resources.  You don’t want to miss this!