Diagnosing von Willebrand Disease

Genetic Bleeding Disorders

“Heavy menstrual bleeding” may be a relative term to your OB-GYN but to you, it’s a devastating reality that literally keeps you from living a normal life. Fear of outward bleeding restricts you from regular activities like work, errands and exercise. Worse, you often bleed heavily for two to three WEEKS. Your doctor isn’t giving you answers, yet you’ve dealt with your heavy bleeding condition and its limitations for years – maybe even decades. Sound familiar? According to Doris Quon, MD, PhD leading hematologist from the Orthopaedic Institute for Children in Los Angeles, you may be one of the two percent of Americans suffering from the most common hereditary bleeding disorder known to medicine: von Willebrand Disease. Effective treatments are available and the disease itself isn’t a mystery, but unfortunately, diagnosing it can be. Now, thanks to powerful new awareness initiatives like FindThe2Percent.com, more doctors and more patients are learning the symptoms of von Willebrand disease, and reaching a swifter diagnosis.

The Balancing Act