World Rare Disease Day

Did you know that one in 10 Americans is living with a rare disease? That means rare diseases affect up to 30 million people in the U.S. Many of those who suffer from a rare disease have a hard time getting a proper diagnosis—some people can go decades without being diagnosed correctly. We are excited […]

30 million people in the United States are living with rare diseases…many of them children…and they can go undiagnosed for years.   Advances in human genome mapping is helping families get treatment faster, and Global Genes is an organization that connects families who are trying to cope. Join President and Founder Nicole Boice and Patient […]