Rare

For over a decade, we’ve proudly given a voice to the voiceless in the rare community. Behind the Mystery collaborates with pharmaceutical companies, foundations, and patient advocacy groups to educate the public on rare and genetic diseases through our recurring segment on Lifetime Television.   # 22q11.2 deletion syndrome / DiGeorge syndrome A Acromegaly Acute […]

Understanding Pheochromocytoma and Paraganglioma: rare neuroendocrine tumors that can dramatically impact survival in people of all ages.

Plasminogen Deficiency (PLGD) is an ultra-rare genetic disease that can have devastating effects on multiple organ systems throughout the body.

This episode of The Balancing Act focuses on two very different diseases: Lupus and Plasminogen Deficiency (PLGD).

From simple ailments to more serious health concerns, cover it all on the Balancing Act.

The show begins with the story of two brave women, who share the genetic trait for a fatal disease. We then examine another disease known as Hunter Syndrome, which primarily affects young boys.

Finding an underlying cause to your child’s long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it’ll also be a huge relief when you’re able to pin-point the problem. On this segment, learn more about Hunter Syndrome.

On this episode, meet two brave women battling the rare genetic condition, ATTR; learn more about avoiding and managing food allergies; and find out how students can save money while they’re away at college.

There may be a ticking time bomb in your veins. It’s rare, potentially deadly, hereditary, and worst of all, it’s most dangerous to expecting and new mothers. It’s called Hereditary Antithrombin (AT) Deficiency. It is among the rarest, most dangerous, and most under-diagnosed of all inherited blood clotting disorders. And it’s highly unlikely that your […]