RARE DISEASES

The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act.

William Yank is a 23-year-old, three-time Leukemia survivor, who now serves as a WEGO Health Patient Leader and a Leukemia and Lymphoma Society Ambassador.

Finding an underlying cause to your child’s long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it’ll also be a huge relief when you’re able to pin-point the problem. Seven-year-old Jackson has Hunter syndrome — a serious genetic disorder that primarily affects males. Hunter syndrome is difficult to diagnose […]

The fifth annual World Orphan Drug Congress will be held in Washington DC. An event dedicated to fostering partnerships and collaboration.  An event bringing hope to millions of people who suffer from rare diseases. Innovators  coming together to help find new treatments…to help discover cures – and  to bring MORE awareness here and around the […]