Rare Disease Day

Chronicling courageous moms who have confronted their child’s rare disease diagnosis. Plus, meet Lesli Nordstrom, NORD Director of Marketing and Communications.

The Balancing Act has partnered with the National Organization for Rare Disorders (NORD) and WEGO Health to shine a light on rare diseases and the impact they have on patients.

At a very young age, Mylah was diagnosed with Kawasaki disease, which causes inflammation in blood vessels throughout the body.

Behind the Mystery co-creators Molly Mager and Carri Levy talk about what prompted them to start the series. Molly’s twin brother was diagnosed with acinar cell cystadenoma at the age of 25, while Carri’s daughter Ilana Jacqueline suffered for years before being diagnosed with Primary Immune Deficiency Disease. We are excited to celebrate #RareDiseaseDay this […]

Did you know that one in 10 Americans is living with a rare disease? That means rare diseases affect up to 30 million people in the U.S. Many of those who suffer from a rare disease have a hard time getting a proper diagnosis—some people can go decades without being diagnosed correctly. We are excited […]

We are excited to celebrate #RareDiseaseDay this February 29th, 2020. For this, we’ll be sharing our favorite patient stories to help raise awareness and give a voice to those who need one. Join us on this day as we recognize patients like little Mylah, who suffers from Kawasaki Disease. A specialized, recurring segment on The Balancing […]

The Balancing Act welcomes back Ilana Jacqueline to discuss her brave journey as she continues battling a rare disease.

On this special edition of The Balancing Act on Rare Disease Day, we are taking a look at the lives of patients who suffer from lesser-known conditions.

During The Balancing Act's Rare Disease special, we explore two rare diseases: X-linked hypophosphatemia and neuroendocrine tumors.