Hunters Syndrome

On this episode, we shine the spotlight on rare diseases such as Hunter’s Syndrome and ATTR. Plus we attend the Global Genes Summit & Gala to celebrate those most affected. Dr. John Berk, Associate Professor of Medicine at Boston University and Clinical Director of its Amyloidosis Center, joins us to discuss the medical condition called […]

Finding an underlying cause to your child’s long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it’ll also be a huge relief when you’re able to pin-point the problem. Seven-year-old Jackson has Hunter syndrome — a serious genetic disorder that primarily affects males. Hunter syndrome is difficult to diagnose […]