Diagnosis

For over a decade, we’ve proudly given a voice to the voiceless in the rare community. Behind the Mystery collaborates with pharmaceutical companies, foundations, and patient advocacy groups to educate the public on rare and genetic diseases through our recurring segment on Lifetime Television.   # 22q11.2 deletion syndrome / DiGeorge syndrome A Acromegaly Acute […]

One of the greatest benefits of technology is when it’s used to support better health, better healthcare access, and better quality of life. One of the most effective collaborations in medicine is the use of Tele-Health in the field of dermatology. Why? Well for one, your skin is by far your largest organ. Second, skin […]

There may be a ticking time bomb in your veins. It’s rare, potentially deadly, hereditary, and worst of all, it’s most dangerous to expecting and new mothers. It’s called Hereditary Antithrombin (AT) Deficiency. It is among the rarest, most dangerous, and most under-diagnosed of all inherited blood clotting disorders. And it’s highly unlikely that your […]

“Heavy menstrual bleeding” may be a relative term to your OB-GYN but to you, it’s a devastating reality that literally keeps you from living a normal life. Fear of outward bleeding restricts you from regular activities like work, errands and exercise. Worse, you often bleed heavily for two to three WEEKS. Your doctor isn’t giving […]

30 million people in the United States are living with rare diseases…many of them children…and they can go undiagnosed for years.   Advances in human genome mapping is helping families get treatment faster, and Global Genes is an organization that connects families who are trying to cope. Join President and Founder Nicole Boice and Patient […]