The Balancing Act

Behind The Mystery unveils the world of Rare and Genetic Diseases

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July 30, 2014
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The road to diagnosis and treatment for patients with rare and genetic diseases is one with very little navigation. With over 7,000 rare diseases and one in every ten people diagnosed - chances are you know someone, or may even BE someone with a rare disease.

When fewer than 200,000 patients struggle with a disease-- who serves to educate, empower, and lead the sick to the right doctors, the right medications and the fastest road to relief?

Behind the Mystery of: Rare and Genetic Diseases is a series produced with the intention of introducing and uniting patient, physician, and scientist with research, education and opportunity to revolutionize the way our health care system works for the Rare and Genetic Minority.

By partnering with The Global Genes Project, The Balancing Act is able to provide available support to patients diagnosed with rare and genetic diseases, and to give hope with news of clinical trials and new treatments. Together, we can begin a new wave of advocacy and support for the rare community.

The Balancing Act supports and celebrates patient advocacy groups and industry leaders, who inspire connect and guide patients as they move forward through their journey towards treatments and a cure.


Past Segments

Cooley's Anemia Foundation

Behind The Mystery unveils the world of Rare and Genetic Diseases

Caregiver Mom

Behind The Mystery unveils the world of Rare and Genetic Diseases

Understanding Alpha-1

Behind The Mystery unveils the world of Rare and Genetic Diseases

A Step Forward In The Treatment Of Myelofibrosis

Behind The Mystery unveils the world of Rare and Genetic Diseases

Hill-Rom Home Airway Clearance

Behind The Mystery unveils the world of Rare and Genetic Diseases

Cushings Syndrome

Behind The Mystery unveils the world of Rare and Genetic Diseases

Cystinosis Research Network

Behind The Mystery unveils the world of Rare and Genetic Diseases

Cancer of Unknown or Uncertain Primary

Behind The Mystery unveils the world of Rare and Genetic Diseases

Hereditary AT Deficency

Behind The Mystery unveils the world of Rare and Genetic Diseases

The Global Genes Project

Behind The Mystery unveils the world of Rare and Genetic Diseases

Pulmonary Fibrosis

Behind The Mystery unveils the world of Rare and Genetic Diseases

LAL Deficiency

Behind The Mystery unveils the world of Rare and Genetic Diseases

Homozygous Familial Hypercholesterolemia

Behind The Mystery unveils the world of Rare and Genetic Diseases

Congenital Sucrase-isomaltase Deficiency (CSID)

Behind The Mystery unveils the world of Rare and Genetic Diseases


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