Understanding & Living with Pompe Disease
June 3, 2014
Positively Impacting The Lives Of People With Pompe
It’s a devastating medical mystery: random symptoms that present in many common diseases; low awareness and misconceptions among physicians; rare incidence and lack of awareness about the disease’s existence. Chances are you’ve never heard of Pompe disease – a degenerative, genetic neuromuscular disease. But thanks to specialists like Dr. Barry Byrne, medical geneticist and Genzyme, leader in discovering and delivering transformative therapies for patients with rare genetic conditions, awareness of Pompe symptoms and disease management is growing. By increasing awareness, physicians can achieve earlier diagnoses and patients can be armed with self-advocacy and better quality of life.
PROMOTED
NeurAxis is dedicated to making sure those who need IB-Stim have access to this safe and effective non-drug alternative for Functional Abdominal Pain due to Irritable Bowel Syndrome in patients aged 11-18 years old.
PROMOTED
Solution for functional abdominal pain due to IBS in teenagers, and professional childcare services at Alvey’s Education.
PROMOTED
The annual Country Music Awards show took place last night at the Moody Center in Austin Texas. The award show aired live on CBS and streamed on Paramount+. Kelsea Ballerini hosted the show and country music’s biggest stars attended. The CMT Music Awards had first-time nominees including Amber Riley, Ashley Cooke, Bret Michaels, Chayce Beckham, Hozier, Koe Wetzel, Stephen […]
