A Look At Non-24 Sleep Disorder With The Center for Sleep & Wake Disorders

Discussion of & Focusing on Non-24 Circadian Rhythm Disorder

It’s a condition not well known by physicians and patients. Non-24 Sleep Disorder is a serious and long-term circadian rhythm disorder occurring in nearly 70 percent of people who are totally blind. People with “Non-24” have difficulty falling asleep and staying asleep through the night as well as significant daytime sleepiness decreasing overall functionality and greatly impacting their lives. Many people impacted do not realize there’s an underlying issue with their master body clock that has left them and their sleep patterns out of sync with the 24 hour day. Join sleep expert, Dr. Helene Emsellem from the Center for Sleep and Wake Disorders, and Anthony, a totally blind individual living with Non-24, as they offer-up insights on this condition and bring-to-light the impact Non-24 has on day-to-day life.


The Balancing Act


Day and Night Out of Sync

Imagine being awake all night while everyone around you sleeps

Imagine being awake all night while everyone around you sleeps, and feeling the uncontrollable urge to sleep during the day despite trying to stay awake. This is the reality for those living with Non-24-Hour Sleep-Wake Disorder or “Non-24,” which affects up to 70 percent of people who are totally blind.

Many people impacted do not even know what they have, or do not realize that there is an underlying issue with their master body clock. That is because most people, sighted and blind, have a master body clock that runs longer than 24 hours. However, the clock is reset to 24 hours every day by light. For many people who are totally blind and do not perceive light, the master body clock cannot be reset to 24 hours.

This results in a master body clock that is out of sync with the typical 24-hour day. This can result in periods of severely disrupted nighttime sleep and the overwhelming urge to sleep during the day, which leads to a decrease in functionality.

Due to its cyclical nature and low awareness among physicians and patients, Non-24 is often misdiagnosed as insomnia or a mood disorder, leading to a delay in diagnosis or a misdiagnosis and inappropriate treatment.

Tune in to The Balancing Act airing on Lifetime TV on Friday, February 21 and 28 at 7:00 am Eastern to meet Anthony, a father of four, who lost his sight in an accident and began experiencing Non-24 symptoms shortly thereafter. Anthony will discuss his journey to diagnosis and managing his Non-24 symptoms.

Appearing alongside Anthony is Dr. Helene Emsellem from the Center for Sleep & Wake Disorders, who will discuss gaps in education around the disorder, symptoms and the importance of patient-physician dialogue.

Anthony’s Non-24 story is being featured as part of The Balancing Act’s series called “Behind the Mystery: Rare and Genetic Diseases.” Check your local listings for Lifetime Television.


The Balancing Act® airing on Lifetime TV Focuses on Support for Rare Diseases Like Non-24 Sleep-Wake Disorder

FOR IMMEDIATE RELEASE

Media Contact:
O2 Media, Inc.
pamela@o2mediainc.com
(954) 691-1102

The Balancing Act® airing on Lifetime TV Focuses on Hope and Support for Rare Diseases, Non-24 Sleep-Wake Disorder, Caregiver Moms

Global Genes, Discount Medical Supplies, and Vanda Pharmaceuticals, Inc. Take Center Stage on February 21st Show

(Pompano Beach, FL – PR.Com/CISION – February 19, 2013) Popular morning show The Balancing Act® airing on Lifetime® TV focuses on hope and support for the RARE Disease community, caregivers and the little known Non-24-Hour Sleep-Wake Disorder, which affects up to 70 percent of people who are totally blind . Make sure to tune in on Friday, February 21st at 7:00 a.m. (ET/PT) as The Balancing Act hosts help jump start the day with animated conversation and trusted information to empower a woman’s life.

Don’t miss these featured segments taking center stage on The Balancing Act:

o Global Genes Celebrates World RARE Disease Day
30 million people in the United States are living with rare diseases – this equates to 1 in 10 American or 10% of the population. Global Genes is an advocacy support group at the forefront of education and providing resources for those in the RARE community, and connects families trying to cope. Join President and Founder Nicole Boice and Patient Ilana Jacqueline as they share their stories of hope and support during this “Behind the Mystery: Rare and Genetic Diseases” segment. This show will re-air February 28, World Rare Disease Day. http://globalgenes.org/

o Helping Caregiver Moms Stay Positive with Discount Medical Supplies
Caregivers of children with special needs know that some days can be very challenging…but there is hope, support and help. Join Julie Moran and Dr. Jon Segal, CEO of Discount Medical Supplies and a caregiver himself, as viewers learn more about the challenges America’s caregivers face each and every day, and what resources are available to them. The company also gives back to charities benefitting special needs children and others. http://www.discountmedicalsupplies.com/

o Non-24: When Night & Day are Out of Sync with Vanda Pharmaceuticals
It’s called Non-24-Hour Sleep-Wake Disorder (Non-24). People with Non-24 have periods of severely disrupted nighttime sleep and an overwhelming urge to sleep during the day, which may lead to a decrease in functionality. Non-24 is a serious, chronic circadian rhythm disorder that affects up to 95,000 totally blind Americans. , Many people impacted do not even know what they have, or do not realize that there is an underlying issue with their master body clock. Due to its cyclical nature and low awareness among physicians and patients, Non-24 is often misdiagnosed as insomnia or a mood disorder, leading to a delay in diagnosis or a misdiagnosis and inappropriate treatment. Join Dr. Helene Emsellem from the Center for Sleep & Wake Disorders, and Anthony, a father of four who lost his sight in an accident and began experiencing Non-24 symptoms, for this “Behind the Mystery: Rare and Genetic Diseases” segment. Together, they will discuss the journey to diagnosis, symptom management and the importance of patient-physician dialogue. http://www.Non-24.com
About The Balancing Act® airing on Lifetime Television
Now in its 6th year, The Balancing Act® continues to empower women in all aspects of their lives. The mission at The Balancing Act is simple – the show strives to help today’s modern woman balance it all by bringing them exceptional solutions to everyday problems. Entertaining, educational and trusted by women, viewers can tune in to America’s premier morning show The Balancing Act on weekday mornings at 7:00 am (ET/PT) airing on Lifetime television. For additional information or to view a segment visit: http://www.thebalancingact.com

For more information regarding O2 Media Inc. Branded Entertainment, Product Placement and TV Brand Integration go to: http://o2mediainc.com/Pages/187/Branded-Entertainment

Join the Conversation!
Like us on Facebook at: https://www.facebook.com/TheBalancingActFans
Follow us on Twitter at: http://twitter.com/#!/balancingacttv
Watch us on YouTube at: http://www.youtube.com/thebalancingact