Living with CSID

Congenital Sucrase-Isomaltase Deficiency, CSID

CSID a Rare Congenital Disorder of the Small Intestine

Congenital Sucrase-Isomaltase Deficiency or CSID is a congenital disease similar to lactose intolerance, but for sucrose, a common form of sugar. The body lacks the primary enzyme in the small intestine responsible for digesting sucrose. Symptoms often overlap with many common GI disorders so it can be difficult to diagnose. Join guests, Dr. William Treem, a pediatric gastroenterologist, a CSID patient and a CSID advocate as they discuss the problem—its symptoms, diagnosis, and treatment.


The Balancing Act


Hope for Gastrointestinal Disorder

Do you or your child have ongoing gastrointestinal symptoms?

Do you or your child have ongoing gastrointestinal symptoms such as:

  • Chronic diarrhea?
  • Bloating?
  • Abdominal pain?
  • Poor physical growth, colic, diaper rash, and vomiting? (pediatric symptoms)

Although these symptoms could indicate GI disorders such as lactose intolerance or Irritable Bowel Syndrome, on rare occasions, a rare genetic disorder called Congenital Sucrase-Isomaltase Deficiency (CSID) may need to be ruled out by your physician as the potential cause of these symptoms.

What exactly is Congenital Sucrase-Isomaltase Deficiency, or CSID?

– CSID is a rare congenital disorder of the small intestine.

– Patients lack the enzymes used in the breakdown of sucrose (table sugar) into simpler forms of sugar for absorption from the intestine into the bloodstream.

– CSID is similar to lactose intolerance, but has more severe symptoms and is more difficult to diagnose.

– Because CSID shares symptoms with other common gastrointestinal disorders, it is often misdiagnosed.

– Many patients suffer for months or years before diagnosis. If you or your child have ongoing symptoms of chronic diarrhea, abdominal pain, & bloating, talk to your doctor about CSID.

There is hope for those suffering from CSID with an FDA-approved enzyme replacement therapy for the sucrose deficiency associated with CSID. Restricting starches in the diet may still may be necessary to reduce symptoms as much as possible.

Tune in on Friday, July 26, August 2 or August 30 at 7:00 am (ET/PT) as Dr. William Treem discusses symptoms, diagnosis and treatment.

For more information, please visit: http://www.qolmed.com, http://www.sucraid.net, and http://www.CSIDcares.org


The Balancing Act® Talks About Rare Disease CSID on Lifetime TV

FOR IMMEDIATE RELEASE

Media Contact:
Pam Steele-Unger
O2 Media, Inc.
pamela@o2mediainc.com
(954) 691-1102

The Balancing Act® Talks About Rare Disease CSID on Lifetime TV

Dr. William Treem, pediatric gastroenterologist, will discuss diagnosis and treatment on Upcoming Show

(Pompano Beach, FL – PR.Com/CISION July 23, 2013) Popular morning show The Balancing Act® will feature the rare disorder of Congenital Sucrase-Isomaltase Deficiency as part of the “Behind the Mystery: Rare & Genetic Diseases” series on the show airing on Friday, July 26th, at 7:00 a.m. (ET/PT) on Lifetime TV. Make sure to watch as hosts Kristi and Danielle help jump start the day with animated conversation and great information to empower a woman’s life.

Don’t miss this featured segment on The Balancing Act:

– Behind the Mystery: Rare & Genetic Disease of CSID
Hear how one mom’s unwavering intuition and determination finally brought about a diagnosis for her daughter with Congenital Sucrase-Isomaltase Deficiency, or CSID. This rare and genetic disorder of the small intestine is similar to lactose intolerance, but the intolerance is for sucrose, a common form of sugar. CSID affects a person’s ability to digest certain sugars due to absent or low levels of two digestive enzymes. Because CSID shares symptoms with other common GI disorders, it is often misdiagnosed. Shedding light on the symptoms, diagnosis, and treatment are guests, Dr. William Treem, a pediatric gastroenterologist, a 9-year old CSID patient, and a CSID patient advocate.

About The Balancing Act® on Lifetime Television
Now in its 6th year, The Balancing Act® continues to empower women in all aspects of their lives. The mission at The Balancing Act is simple – the show strives to help today’s modern woman balance it all by bringing them exceptional solutions to everyday problems. Entertaining, educational, and trusted by women, viewers can tune in to America’s premier morning show, The Balancing Act, on weekday mornings at 7:00 am (ET/PT) on Lifetime Television.

For additional information or to view a segment, visit: http://www.thebalancingact.com
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