The Hollywood Spotlight Shines On Rare Disease Awareness

Hunters Syndrome

Today, you may think you’re not affected by rare disease – but based on the realities of human genetics, you, your child or your loved one could wake up tomorrow with a different reality.  Gradual or sudden onset of mysterious symptoms.  Doctor after doctor.  Second, third and fourth opinions.  Sleepless nights.  A critical race against time searching for answers.  A literal fighting for a loved one’s life.  This is the fight grips the hearts of families, researchers, medical experts, treatment developers… and the creators of The Balancing Act.  The award-winning medical series Behind The Mystery is The Balancing Act’s tribute to the fight for rare disease advocacy, awareness, treatment, patient support, even disease cures.  Join us as we pay tribute to Rare Disease Day and the global awareness of rare diseases.  Grab a backstage pass to the 4th Annual The Global Genes Summit & Gala, held in beautiful Huntington Beach California.  Star gaze as Hollywood’s A-List comes out to pay tribute to the cause.


The Balancing Act