Cooley’s Anemia Foundation

Thalassemia – a lifetime of transfusions. Most thalassemia trait carriers don’t know it. Join the fight against thalassemia.

Cooley’s anemia, or thalassemia, is a genetic blood disorder that can be fatal if not treated early.
Originally thought to affect mostly people of Mediterranean heritage, people from many other backgrounds carry the trait. So how can we find out if we carry the trait?

Amy Celento of the Cooley’s Anemia Foundation joins us and details how doctors can review results of regular and routine blood tests to see if you are a carrier. It’s important medical information you don’t want to miss.


The Balancing Act


The Silent Trait

People who are from or descended from certain regions of the world may see a prevalence of this trait

Thalassemia, or Cooley’s anemia is a serious, genetic inherited blood disorder. Most people who carry the thalassemia trait are completely unaware of it.

Two people who both carry the trait have a 25% chance WITH EACH PREGNANCY of having a child with a severe form of thalassemia.

o Thalassemia is a genetic blood disorder that is fatal if not treated early.
o Treatment for severe cases is lifelong blood transfusions & difficult daily drug treatment.
o A Bone marrow transplant can provide a cure, but only for select recipients (although advances are expanding that list of recipients).
o Gene therapy trials, in early stages, show promise for a cure as well.
o The Cooley’s Anemia Foundation is the only national non-profit dedicated solely to thalassemia issues.

Patients with this disorder have hemoglobin that is deficient in proteins that help red blood cells carry oxygen. This means the right amount of oxygen does not get to their organs resulting in the need for regular blood transfusions; in severe cases, the need for transfusions is every 2-3 weeks in order to have hemoglobin to sustain life.

But there can be big challenges with the regular transfusions. When blood transfusions are received, a lot of iron is going in with the blood. Since the body has no natural way to eliminate iron this extra iron will cause iron overload. Iron overload can be very dangerous and can damage the heart and liver as well as many other organs.

People from certain regions of the world or who are descended from them may see a prevalence of the trait: the Mediterranean (Italians and Greeks), South and Southeast Asia, China, northern Africa and the Middle East. Testing is very important if your child has genetic ties to one of these regions. The earlier the disease is found, the faster treatments can be started.

The good news is you can find out if you have the trait through simple and routine blood tests; knowing if you carry the trait helps you when making family planning decisions. And thanks to advances in treatment, people who are born with a severe form of thalassemia can now lead longer, fulfilling lives.

Make sure to tune in to The Balancing Act on Thursday, May 8th and May 15th, 2014 at 7:00 am (ET/PT) on the Lifetime Channel as Amy Celento from the Cooley’s Anemia Foundation, and mom to a child living with the condition, discusses Cooley’s anemia.

**ApoPharma provided a grant for this segment

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The Balancing Act® airing on Lifetime® Talks Cooley’s Anemia

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The Balancing Act® airing on Lifetime® Talks Restorative Sleep and Cooley’s Anemia

Cooley’s Anemia Foundation and NHI Consumer Products Take Center Stage on May 8th Show

(Pompano Beach, FL – PR LOG — May 7, 2014) Award-winning morning show The Balancing Act® airing on the Lifetime® Channel welcomes top names in resources for Cooley’s Anemia and restorative sleep to the show. Make sure to tune in on Thursday, May 8th at 7:00 a.m. (ET/PT) as The Balancing Act hosts help jump start the day with animated conversation and trusted information to empower a woman’s life.

Don’t miss these featured segments taking center stage on The Balancing Act:

o Thalassemia – A Lifetime of Transfusions
Cooley’s anemia, or thalassemia, is a genetic blood disorder that can be fatal if not treated, and most people who carry the thalassemia trait are completely unaware of it. Amy Celento of the Cooley’s Anemia Foundation joins us and details how doctors can review results of regular and routine blood tests to see if you are a carrier. Two people who both carry the trait have a 25% chance with each pregnancy of having a child with a severe form of thalassemia. It’s important medical information you don’t want to miss.

http://www.thalassemia.org

o The Importance of Restorative Sleep with NFI Consumer Products
Trouble falling asleep or staying asleep can certainly inhibit a good night’s rest. Without the recommended amount of 8 hours of sleep, the restorative sleep we need for better physical and mental health is lost. Join Benjamin Blessing of NFI Consumer Products as he talks about an all natural sleep aid called 8-Hour Sleep, a rapid melt that helps people fall asleep and stay asleep through the night. http://www.nfiproducts.com

“The Balancing Act is the perfect platform to discuss the importance of all natural sleep aids. Their commitment to improving overall health will help us challenge the current trend in pharmaceutical sleep aids,” says Blessing, VP of NFI.

About The Balancing Act® on Lifetime® Television
Now in its 6th year, The Balancing Act continues to empower women in all aspects of their lives. The mission at The Balancing Act is simple – the show strives to help today’s modern woman balance it all by bringing them exceptional solutions to everyday problems. Entertaining, educational and trusted by women, viewers can tune in to America’s premier morning show The Balancing Act on weekday mornings at 7:00 am (ET/PT) airing on Lifetime television. For additional information or to view a segment visit: http://www.thebalancingact.com

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